DAVEIGH IS SUCH A BRIGHT LITTLE GIRL WITH SO MUCH POTENTIAL. I AM SO HAPPY THAT SHE CAME INTO MY LIFE! DAVEIGH ANGELIQUE WAS BORN ON NOVEMBER 3, 2003.I HAD A NORMAL PREGNANCY AND WAS SO EXCITED TO FINALLY MEET MY LITTLE GIRL! ON DAVEIGHS FIRST DAYS OF LIFE I NOTICED THAT HER LEFT EYE STILL HADN'T OPENED. I KNEW THAT SOMETHING WAS WRONG. WELL IT TOOK HER ABOUT A WEEK TO OPEN IT. SHORTLY AFTER WE NOTICED THAT SHE WOULD CRY AND MAKE HER BODY REAL STIFF. WE JUST THOUGHT SHE GOT SCARED WITH PEOPLES LOUD VOICES AROUND HER. WHEN DAVEIGH WAS TWO MONTHS OLD WE WERE REFERRED TO THE TEXAS CHILDRENS HOSPITAL TO SEE THE OPHTHALMOLOGIST. DR. JANE EDMOND WAS THE FIRST ONE TO LET OUR FAMILY KNOW THAT SHE BELIEVED DAVEIGH HAD AICARDI'S SYNDROME. DAVEIGH'S EYES WERE SO UNDERDEVELOPED THAT DR. EDMOND BELIEVED SHE WOULD NEVER BE ABLE TO SEE.
DAVEIGH HAD A DIFFICULT TIME LIFTING HER HAD AND SITTING UP ALL BY HERSELF. WE GOT HER IN ECI AND SHE DID SO WELL! BY THE TIME SHE WAS GOING TO BE TWO SHE STARTED CRAWLING, BUT SHE ALSO HAD HER FIRST SEIZURE. THAT ONE LASTED ABOUT 30-45 MIN. IT WAS DEVASTATING BECAUSE I DIDNT KNOW WHAT WAS GOING ON WITH HER. I HAD ALWAYS HAD MY DOUBTS ABOUT DAVEIGH HAVING AICARDI'S SYNDROME. I REALLY WANTED TO BELIEVE IT WAS JUST AN ISOLATED CASE OF HER BEING BLIND BUT THAT SEIZURE REALLY CHANGED MY MIND. HER PHENOBARB HELPED HER FOR AWHILE BUT WE SLOWLY BUT SURELY GOT HER ON TRILEPTAL,WHICH SHE TAKES TILL THIS DAY. DAVEIGH HAS BEEN FORTUNATE TO ONLY HAVE VERY FEW SEIZURES SINCE HER 2ND BIRTHDAY. EACH ONE IS ABOUT 6 MONTHS APART THEN IT WAS LIKE 3 MONTHS AND MOST RECENTLY ON VALENTINES DAY. THAT TIME I NOTICED HER LIPS TURNED BLUE AND SHE WAS HAVING TROUBLE BREATHING BUT THANK GOD BY THAT TIME WE WERE ALREADY IN THE E.R. THAT NIGHT SHE HAD ABOUT 5 AND FOR SOME REASON THEY JUST COULDNT GET THEM UNDERCONTROL EVEN AFTER I GAVE HER THE DIASTAT! HER DOSAGE OF TRILEPTAL WAS INCREASED TO 6ML 6ML AND 6.5ML (SHE TAKES IT 3 TIMES A DAY). DAVEIGH IS ONE TOUGH COOKIE AND LOVES TO BE AROUND OTHER CHILDREN. SHE IS IN A PPCD PROGRAM IN SCHOOL AND HAS AJUSTED VERY WELL TO THE CLASSROOM ENVIRONMENT. HER THERAPY INCLUDES : PT, OT, O&M, SPEECH, AND VI. SHE LOVES TO SING AND HUM HER FAVORITE SONGS. SHE STILL HAS DIFFICULTY SPEAKING BUT HOPEFULLY SOON SHE WILL BE ABLE TO COMMUNICATE WITH US BETTER! ALTHOUGH SHE STRUGGLES A BIT, DAVEIGH KNOWS HOW TO CLIMB UP FURNITURE AND GET FROM ROOM TO ROOM. SHE STILL NEEDS HELP WALKING FROM PLACE TO PLACE BUT WITH GODS HELP SHE WILL BE ABLE TO DO IT ALL AND MORE!
RECENTLY WE MOVED FROM BROWNSVILLE TO TEXAS CITY. THE MOVE HAS BEEN HARD BECAUSE SHE HASNT BEEN ABLE TO HEAR GRANDMA AND GRANDPA OR HER AUNT JENA OR JESS! THE ONE THING THAT HAS REALLY BEEN HARD WAS THE PASSING OF HER NANA GUTIERREZ WHO WAS BATTLING CANCER. SHE WAS VERY CLOSE TO HER NANA AND LOVED HER SO MUCH. NANA WILL ALWAYS BE IN OUR HEARTS AND SHE WILL ALWAYS BE LOVED AS WELL AS GREATLY MISSED. DAVEIGH HAS BEEN ABLE TO DEAL WITH ALL OF THE CHAOS FROM MOVING BY SPENDING TIME WITH HER COUSIN VICTORIA IN HOUSTON. THOSE TWO ARE THE BEST OF FRIENDS. VICTORIA IS SO PROTECTIVE OF HER AS WELL AS VERY UNDERSTANDING. IM AMAZED AT HOW MUCH PATIENCE VICTORIA HAS FOR HER MOST KIDS JUST STARE AND GIVE UP. THEY TRULY HAVE A SPECIAL FRIENDSHIP. DAVEIGH IS A VERY SMART GIRL AND I CAN ONLY SEE HER IMPROVING EVEN MORE THANKS TO THIS MOVE AND THE WONDERFUL FAMILY AND FRIENDS WE HAVE!
IF ANYONE HAS ANY QUESTIONS OR WOULD JUST LIKE TO TALK FOR SUPPORT FEEL FREE TO EMAIL ME. =)
08-26-2007
