Site Network:

Email Support Groups on Yahoo! groups

Not familiar with Yahoo groups or other listservs? Click here for a quick explanation.

The Primary Group

Aicardi Syndrome Listserv

This is the main email group for families caring for children with Aicardi syndrome. It is open to discussion of all topics related to raising a child with Aicardi syndrome.

Use the link above, or enter your email address here to join:


Special Interest Groups

The groups below exist to bring together certain special interests within the larger Aicardi syndrome community, and provide smaller forums for more specific discussion. The topics discussed in these specialized groups are also appropriate to discuss in the main group, and in most cases, members of these groups also participate in the main group (above).

Aicardi Mild Listserv

for topics of particular interest to those mildly affected by the syndrome

Your email address:

Aicardi Angels Listserv

for those who have lost a child with Aicardi syndrome

Your email address:

Aicardi Dads Listserv

for fathers of children with Aicardi syndrome

Your email address:

Aicardi Grandparents Listserv

for grandparents of children with Aicardi syndrome

Your email address:

Aicardi Siblings Listserv

for siblings of children with Aicardi syndrome

Your email address:


If you have any trouble with the links above or getting signed up for an email group, please email web@aicardisyndrome.org for assistance.