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The ideas and opinions expressed in these pages are solely those of the individual authors. Any and all parents of children with Aicardi syndrome are welcome to share their stories here. You may do so by creating an account and building a page yourself, or we will help you if you email your story and photos to web@aicardisydnrome.org
Abigayle RichardsUtahUnited States
Adelyn "Addie" StroupMarylandUSA
Adriana AguayoUSA
Alana ColemanUSA
Alessandra Ericka Montero SedanoPeru
Alexandra KanczuzewskiUSA
Alexis AbrahamUSA
Alexis Madison SheppardNew Jerseyusa
Alyssa HofmeyerUSA
Amber KennamerWisconsinUSA
Amelia AshleyNew JerseyUSA
Amy CostaUSA
Analisse Yesenia MinayaFloridaU.S
AngelGeorgiaUSA
ANIACHIHUAHUA MEXICO
Anna Rae AadsenMinnesotaUSA
Anna Rae AadsenUSA
AnnabelleMassachusetts
Anne-Lorène PerrouxFrance
Annie Michelle TolmanNebraskaUSA
Annie Opal FordWashingtonUSA
Ashley BrownOhioUSA
Ashley BunnerMassachusettsUSA
Ashtyn SmithUSA
Astrid GlasmacherMichiganUSA
Audrey RUSA
Audrey RNebraskaUSA
Aurélie LeseuxFrance
Ava Brooke HarrisUSA
Ava Shaye GumsonFloridaUnited States
Aysenaz
AzariaUSA
Bailey RaeSouth Africa
Beatrice SacconeItaly
Brianna DillonUSA
Brianna HendersonFloridaUSA
Brianna HendersonUSA
BridgetUSA
Brooke ElizabethArizonaUSA
Bruna Quadros de MendonçaBrazil
Burgundy Larissa PelzmanMinnesotaUSA
Caitlin HoelUSA
CANDELARIA Y SOFIA ARGENTINA
Candelaria y Sofia Villegasargentina
Caris Lea Woods-ChappellUK
Carman LayUSA
Carmen MoraEspaña
CarolinePennsylvaniaUSA
Caroline "Carrie" GabelTexasUSA
Carson Leigh BlandaPennsylvaniaUSA
Catalina PlazaArgentina
Cayla WilliamsCaliforniaUSA
Cecelia Rose BabinecUSA
Charlene BarryUSA
Chloe Louise
Christina TheodoridisGermany / Greece
Cinzia CotzaItaly
Claire ScheerMissouriUSA
Claire SiemonOregonU.S.A.
Crystal CaliforniaLos angeles
Cynthia RosFrance
Dakotah Ashleigh HughesFloridaUSA
Dallas WattUK
Danica DeneaultRhode IslandUSA
Danna NohemiMexico
Daveigh Angelique GutierrezUSA
David RoyallTexasUnited States
David RoyallUSA
Davina MariaGeorgiaUSA
Denise Kofler
Devan Agnes GounaudUSA
Eabha O' MahonyIreland
Edelyn TorresTexasUSA
EdenIowaUSA
Eden ElizabethIowaUSA
Elisa Paige BushUSA
Elizabeth Halligan
EllaMichiganUSA
EllieUSA
EmilieTexasUnited States
Emily Brooks
Emily JoostIllinoisUSA
Emma FaithCaliforniaUSA
Emma MilesCanada
Emma NicholeVermontUnited States
Erin KryciaMarylandUSA
Esin KocerTurkey
EstherBrazil
Esther BerkeUSA
Esther Passos Ribeiro de OliveiraBrazil
Esther Passos Ribeiro de OliveiraBrazil
Evelyn LeeAnnUSA
Faith Richelle SalasTexasU.S.A
Fatimah azZahraIndonesia
Gabriella Marie WeisNew YorkUSA
Gabriella ReedAustralia
Gabriella WeisUSA
Gianna MariePennsylvaniaUSA
Gracie JeanetteOhioUSA
Gwen HowardUSA
Hailey RosePennsylvaniaUSA
Haleigh KafferlinPennsylvaniaUSA
Hania BejdaPoland
Hannah DrakeUSA
Hannah Jones-TaylorKentuckyUSA
Hannah ShroadsUSA
Hannah ShroadsNorth CarolinaUSA
Hayleigh HuntMichiganUnited States
Hayleigh Payton HuntUSA
Hope ReichertIllinoisUnited States
Irey PerezMissouriUSA
Iris MariaBrasil
IsabellaCaliforniaUnited States
Isabella Guadalupe LomaWyomingUSA
Isabella VillenaIreland
Jaylen WalkerUSA
JaynineEngland, United Kingdom
Jenni OstmeyerUSA
Jennifer Altagracia Santana
Jennifer Ann PeetTexasUnited States
Jennifer PeetUSA
Jennifer ZitnayUSA
Jenny ZitnayMarylandUSA
Joanna HodgeArizonaUnited States
Joanna HodgeArizonaUSA
Johannah Taylor HollowayGeorgiaUSA
Jolin JosefiakGermany
Jordyn Terra GomezUSA
Joselynne JonesIllinoisUSA
Joselynne Rachelle JonesIllinois
Judith Perez Illinoisusa
Julia RosnerUSA
Julianna HopeFloridaUnited States
Julianna Isabella ArmstrongPennsylvaniaUSA
Julie CoutantFrance
Kady Frances KingUSA
Kaia HaugerudNorway
Kailey OstromUSA
Karleena Rose JohnsonCaliforniaUSA
Katelyn BickelUSA
Katelyn BickelIndianaUSA
Katelyn MoonVirginiaUSA
Katelyn ScogginsCaliforniaUnited States
Kathryn (Katie) Jeanne VerdecchiaWashingtonUSA
Katie DodsworthEngland
Katie O'DonnellUSA
Kaylie AnnableUSA
Kendall KrauseTexasUSA
Kyla Jolene ParkerCanada
LailaKentuckyUnited States
Lauren DickeyNew Zealand
Leyla MoncadaFloridaUSA
Leyla SpitzerUSA
Lillian GraceWashingtonUnited States
Lillian Jo UtleyCaliforniaUSA
Lillian Jo UtleyCaliforniaUSA
Lilly Ann UsherMassachusettsUsa
Logan ThibodeauUSA
Lorelei Grace SalmonTexasUSA
Macey PaupOregonUSA
Maddieson Louise ButtonAustralia
Madeleine BochatUSA
Madeline Grace HardinVirginiaUSA
Madelyn SmithUSA
Madyson Elaine HullMissouriUSA
Maia MichalakouGreece
Maike KaltenbachGermany
Maricarmen VeraVenezuela
Marina PreikshotCanada
MarionnaMississippiusa
MarionnaMississippiUnited states
Marisa AndersUSA
Mary Kate CrawfordLouisianaUSA
MaryamUSA
Maureen SpeziaTexasUSA
Megan KellermanUSA
Megan Lynn HartmanIowaUSA
Melanie Olivia GonzalezMexico
Mia Caitlyn CullenAustralia
Michala HopkinsUSA
Mikayla Marie WisherMontanaUSA
MILANI GARCIATexas
Millie CrocombeUK
Morgan ClementUSA
Myleigh Rae Michelle Reagle MichiganUSA
Naomi Alessandra Amador VarelaHonduras
naziiah davis-barkleyNew Jerseyunited states
Nicole Crystal SandsEngland
Nicole Katerina Miller CaliforniaUSA
Nikki CorselloUSA
Nikki van DamThe Netherlands
Nora FenielloArizonaUSA
Ocenica Senadi PereraBahrain
Olivia SarafinSouth CarolinaUSA
Our blessingNew YorkUnited states
Our blessingNew YorkUnited states
Paige BlakeUSA
Paisley Mae MixArizonaUnited States
pakhiIndia
Payton FlemingColoradoUnited States
Payton FlemingColoradoUnited States
Penelope Jane FymanNew YorkUSA
Piper KoozerTennesseeUSA
Rachel FeenstraUSA
Rachel Feenstra
Rebecca OnoriItaly
Renske HavermansHolland
Riley SpauldingUSA
Riley WoodColoradoUSA
RosalieCanada
RubyArizonaUnited States
Rylynn RichardUSA
Samantha IhrigOhioUnited States
Samantha IhrigUSA
Sara HoffmanUSA
Savannah Nicole WilsonWashingtonUSA
Savannah SamuelsUSA
Sayliana SchumerFloridaUSA
Shaylee Beth BerryhillMichiganUSA
SieraNew Zealand
SieraNew Zealand
Sierra RoseUSA
Stella Bezerra FernandesBrazil
Stella Hoogendamthe netherlands
Summer Faith HarrisUSA
Sunday NelsonUSA
SydneyColoradoUnited States
Talitha Tliveira SouzaBrazil
Tammy Andree Messenger
Tamzin McBridethe Netherlands
Tara DoddAustralia
Ulrike van HeerdenSouth Africa
Valerie MelendiArizonaUSA
Veronica Isabel PadronUSA
Veronica Isabel PadronTexasUSA
Victoria MahuskyCanada
Victoria OramOntario, Canada
Whitney Nicole Daniels
Willow BushU.K.
Yoneko YamadaJapan