The ideas and opinions expressed in these pages are solely those of the individual authors. Any and all parents of children with Aicardi syndrome are welcome to share their stories here. You may do so by creating an account and building a page yourself, or we will help you if you email your story and photos to web@aicardisydnrome.org

	Abigayle Richards	Utah	United States
	Adriana Aguayo		USA
	Alana Coleman		USA
	Alessandra Ericka Montero Sedano		Peru
	Alexandra Kanczuzewski		USA
	Alexis Abraham		USA
	Alexis Madison Sheppard	New Jersey	usa
	Alyssa Hofmeyer		USA
	Amber Kennamer	Wisconsin	USA
	Amelia Ashley	New Jersey	USA
	Amy Costa		USA
	Analisse Yesenia Minaya	Florida	U.S
	Angel	Georgia	USA
	ANIA		CHIHUAHUA MEXICO
	Anna Rae Aadsen	Minnesota	USA
	Anna Rae Aadsen		USA
	Annabelle	Massachusetts
	Anne-Lorène Perroux		France
	Annie Michelle Tolman	Nebraska	USA
	Annie Opal Ford	Washington	USA
	Ashley Brown	Ohio	USA
	Ashley Bunner	Massachusetts	USA
	Ashtyn Smith		USA
	Astrid Glasmacher	Michigan	USA
	Audrey R	Nebraska	USA
	Audrey R		USA
	Aurélie Leseux		France
	Ava Brooke Harris		USA
	Ava Shaye Gumson		USA
	Ava Shaye Gumson
	Ava Shaye Gumson	Florida	United States
	Aysenaz
	Azaria		USA
	Bailey Rae		South Africa
	Beatrice Saccone		Italy
	Brianna Dillon		USA
	Brianna Henderson	Florida	USA
	Brianna Henderson		USA
	Bridget		USA
	Brooke Elizabeth	Arizona	USA
	Bruna Quadros de Mendonça		Brazil
	Burgundy Larissa Pelzman	Minnesota	USA
	Caitlin Hoel		USA
	CANDELARIA Y SOFIA		ARGENTINA
	Candelaria y Sofia Villegas		argentina
	Caris Lea Woods-Chappell		UK
	Carman Lay		USA
	Carmen Mora		España
	Caroline	Pennsylvania	USA
	Caroline "Carrie" Gabel	Texas	USA
	Carson Leigh Blanda	Pennsylvania	USA
	Catalina Plaza		Argentina
	Cayla Williams	California	USA
	Cecelia Rose Babinec		USA
	Charlene Barry		USA
	Chloe Louise
	Christina Theodoridis		Germany / Greece
	Cinzia Cotza		Italy
	Claire Scheer	Missouri	USA
	Claire Siemon	Oregon	U.S.A.
	Crystal	California	Los angeles
	Cynthia Ros		France
	Dakotah Ashleigh Hughes	Florida	USA
	Dallas Watt		UK
	Danica Deneault	Rhode Island	USA
	Danna Nohemi		Mexico
	Daveigh Angelique Gutierrez		USA
	David Royall		USA
	Davina Maria	Georgia	USA
	Denise Kofler
	Devan Agnes Gounaud		USA
	Eabha O' Mahony		Ireland
	Edelyn Torres	Texas	USA
	Eden	Iowa	USA
	Eden Elizabeth	Iowa	USA
	Eden Elizabeth	Iowa	USA
	Elisa Paige Bush		USA
	Elizabeth Halligan
	Ella	Michigan	USA
	Ellie		USA
	Emilie	Texas	United States
	Emily Brooks
	Emily Joost	Illinois	USA
	Emma Faith	California	USA
	Emma Miles		Canada
	Emma Nichole	Vermont	United States
	Erin Krycia	Maryland	USA
	Esin Kocer		Turkey
	Esther		Brazil
	Esther Berke		USA
	Esther Passos Ribeiro de Oliveira		Brazil
	Esther Passos Ribeiro de Oliveira		Brazil
	Evelyn LeeAnn		USA
	Faith Richelle Salas	Texas	U.S.A
	Fatimah azZahra		Indonesia
	Gabriella Marie Weis	New York	USA
	Gabriella Reed		Australia
	Gabriella Weis		USA
	Gianna Marie	Pennsylvania	USA
	Gracie Jeanette	Ohio	USA
	Gwen Howard		USA
	Hailey Rose	Pennsylvania	USA
	Haleigh Kafferlin	Pennsylvania	USA
	Hania Bejda		Poland
	Hannah Drake		USA
	Hannah Jones-Taylor	Kentucky	USA
	Hannah Shroads	North Carolina	USA
	Hannah Shroads		USA
	Hayleigh Hunt	Michigan	United States
	Hayleigh Payton Hunt		USA
	Hope Reichert	Illinois	United States
	Irey Perez	Missouri	USA
	Iris Maria		Brasil
	Isabella	California	United States
	Isabella Guadalupe Loma	Wyoming	USA
	Isabella Villena		Ireland
	Jaylen Walker		USA
	Jaynine		England, United Kingdom
	Jenni Ostmeyer		USA
	Jennifer Altagracia Santana
	Jennifer Ann Peet	Texas	United States
	Jennifer Peet		USA
	Jennifer Zitnay		USA
	Jenny Zitnay	Maryland	USA
	Joanna Hodge	Arizona	USA
	Joanna Hodge	Arizona	United States
	Johannah Taylor Holloway	Georgia	USA
	Jolin Josefiak		Germany
	Jordyn Terra Gomez		USA
	Joselynne Jones	Illinois	USA
	Joselynne Rachelle Jones	Illinois
	Judith Perez	Illinois	usa
	Julia Rosner		USA
	Julianna Hope	Florida	United States
	Julianna Isabella Armstrong	Pennsylvania	USA
	Julie Coutant		France
	Kady Frances King		USA
	Kaia Haugerud		Norway
	Kailey Ostrom		USA
	Karleena Rose Johnson	California	USA
	Katelyn Bickel		USA
	Katelyn Bickel	Indiana	USA
	Katelyn Moon	Virginia	USA
	Katelyn Scoggins	California	United States
	Kathryn Jeanne	Washington	USA
	Katie Dodsworth		England
	Katie O'Donnell		USA
	Kayli M. Taylor	Missouri	USA
	Kaylie Annable		USA
	Kendall Krause	Texas	USA
	Kyla Jolene Parker		Canada
	Laila	Kentucky	United States
	Lauren Dickey		New Zealand
	Leyla Moncada	Florida	USA
	Leyla Spitzer		USA
	Lillian Grace	Washington	United States
	Lillian Jo Utley	California	USA
	Lillian Jo Utley	California	USA
	Lilly Ann Usher	Massachusetts	Usa
	Logan Thibodeau		USA
	Macey Paup	Oregon	USA
	Maddieson Louise Button		Australia
	Madeleine Bochat		USA
	Madeline Grace Hardin	Virginia	USA
	Madelyn Smith		USA
	Madyson Elaine Hull	Missouri	USA
	Maia Michalakou		Greece
	Maike Kaltenbach		Germany
	Maricarmen Vera		Venezuela
	Marina Preikshot		Canada
	Marionna	Mississippi	usa
	Marionna	Mississippi	United states
	Marisa Anders		USA
	Mary Caroline Clavin		USA
	Mary Kate Crawford	Louisiana	USA
	Maryam		USA
	Maureen Spezia	Texas	USA
	Megan Kellerman		USA
	Megan Lynn Hartman	Iowa	USA
	Melanie Olivia Gonzalez		Mexico
	Mia Caitlyn Cullen		Australia
	Michala Hopkins		USA
	Mikayla Marie Wisher	Montana	USA
	MILANI GARCIA	Texas
	Millie Crocombe		UK
	Morgan Clement		USA
	Myleigh Rae Michelle Reagle	Michigan	USA
	Naomi Alessandra Amador Varela		Honduras
	naziiah davis-barkley	New Jersey	united states
	Nicole Crystal Sands		England
	Nicole Katerina Miller	California	USA
	Nikki Corsello		USA
	Nikki van Dam		The Netherlands
	Nora Feniello	Arizona	USA
	Ocenica Senadi Perera		Bahrain
	Olivia Sarafin	South Carolina	USA
	Our blessing	New York	United states
	Our blessing	New York	United states
	Paige Blake		USA
	Paisley Mae Mix	Arizona	United States
	pakhi		India
	Payton Fleming	Colorado	United States
	Payton Fleming	Colorado	United States
	Penelope Jane Fyman	New York	USA
	Piper Koozer	Tennessee	USA
	Rachel Feenstra
	Rachel Feenstra		USA
	Rebecca Onori		Italy
	Renske Havermans		Holland
	Riley Spaulding		USA
	Riley Wood	Colorado	USA
	Rosalie		Canada
	Ruby	Arizona	United States
	Rylynn Richard		USA
	Samantha Ihrig	Ohio	United States
	Samantha Ihrig		USA
	Sara Hoffman		USA
	Savannah Samuels		USA
	Savannah Wilson	Washington	United States
	Sayliana Schumer	Florida	USA
	Shaylee Beth Berryhill	Michigan	USA
	Siera		New Zealand
	Siera		New Zealand
	Sierra Rose		USA
	Stella Bezerra Fernandes		Brazil
	Stella Hoogendam		the netherlands
	Summer Faith Harris		USA
	Sunday Nelson		USA
	Sydney	Colorado	United States
	Talitha Tliveira Souza		Brazil
	Tammy Andree Messenger
	Tamzin McBride		the Netherlands
	Tara Dodd		Australia
	Ulrike van Heerden		South Africa
	Valerie Melendi	Arizona	USA
	Veronica Isabel Padron	Texas	USA
	Veronica Isabel Padron		USA
	Victoria Mahusky		Canada
	Victoria Oram		Ontario, Canada
	Whitney Nicole Daniels
	Willow Bush		U.K.
	Yoneko Yamada		Japan