So you just found out your Child has Aicardi’s Syndrome?

Although you love your child, this may be a shocker for you and may or may not be unexpected. Things are going to seem, or even be, overwhelming for awhile. You are going to grieve. With all the new and sudden changes in your life (doctor’s appointment’s ect) there isn’t even a moment to let you breathe. There seems so much to do and you are not only unsure what is needed or what to ask for, you don’t even know where to start.